What happens to information held about you?

at Addenbrooke's

Clinical information is held about you to ensure that clinicians have a complete and continuous record about your past, current and future treatment. As well as clinical information we also hold your name, address and date of birth to identify who you are. You are given a unique patient identifier: your hospital number. This is how we locate your records and is used, where possible, in communications about you.


The computerised and paper records held about you are solely for the purpose of your health and well being. Your information is shared with other health professionals involved in your care, this can include but it not limited to GP practices, other hospitals, other Trust departments who are involved in providing you with your care and community services.


Depending on your circumstances we may also need to share your information with external organisations to provide you with your treatment, drugs or equipment, this can include but is not limited to the voluntary sector, care homes, pharmaceutical companies, private health care providers and external companies who provide specialist equipment.


Your information may also need to be shared with your Primary Care Trust in order for us to receive payment for your treatment.


In certain circumstances; we are required by law to report information to the appropriate authorities. This information is only provided after formal authority has been given by a qualified health professional.  For example:

  • Notification of new births
  • Where we encounter infectious diseases which may endanger the safety of others e.g. meningitis or measles
  • Where a formal court order has been issued


What else can your information be used for?


Clinical Audit

During or following treatment your information will be used for clinical audit to review current standards of care against best-practise care. Audit results are discussed by clinicians, and can be published and/or presented but always in an anonymised format so that you cannot be identified.


National Register

Your information is sometimes passed for entry to national registers e.g. the diabetic register, cancer register, transplant databases and other national and local databases held (sometimes on other sites) about various illnesses. This information is used for management purposes, and from a public health perspective, to identify what types of illnesses the general public suffer from.


Improving the NHS

Your information is used to help manage the NHS. It is passed in an anonymised format, and in some cases, in an identifiable format for national and local returns. These returns are interrogated for waiting times, quality of information and care, and treatment information.



Your information could be used for research but only with your consent. Research seeks to investigate new treatments, interventions and management procedures so that patient care is continually improved.


Teaching Purposes

Your Information could be used to educate doctors, nurses, pathologists and other professionals involved in patient care. This would normally be anonymised information, if you would be identified your consent would be obtained.


Social workers

In order to ensure you have an appropriate care package set up when you are discharged from hospital we may need to share your information with social services, you will be informed of this and your consent will be obtained.



Your consent or a court order would be obtained before information is shared.



Your consent would be obtained to share your information with NHS complaint committees. Your consent would be assumed if you contact Patient Advice and Liaison to investigate a complaint.


Addenbrookes Charitable Trust/Foundation Trust Membership Office

The Trust would like to include you in its development and may send you correspondence from time to time that you may find of interest. This could come from the Addenbrooke’s Charitable Trust, or from our Foundation Trust Membership Office.


Your rights


You may register an objection to uses of your information, and the hospital will use all practical measures to follow your wishes, please contact the Data Protection Officer:

> Data protection


You also have the right to see your health records (a fee is chargeable), and to make corrections if necessary:

> Access to Health Records


The Trust is committed to complying with the Data Protection Act and to keeping your information confidential and secure, for further information please refer to the Information Charter





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On this website:


> Patient Advice & Liaison Services (PALS)


> Making a complaint


> Freedom of information



On other sites:


> NHS Care Records Service

To improve the service and quality of your care a new computer network is being developed nationally that will phase out the need for paper and film records. The network will hold your entire patient record to allow Hospitals, GP’s and chemist’s secure access to your health records to improve information sharing across the NHS.


> The Information Commissioner


> NHS Connecting for Health


> Ministry of Justice


> Department of Health